Monday, October 12, 2015

The Bottle of my Mind

I slept about a bajillion hours yesterday, which was good because today was a big day full of many errands.  The most disconcerting thing I did today was add to Emily's migraine journal.  The most fun thing I did today was buy school supplies at Target.  The things I am most proud of accomplishing today are hitting two doctor appointments (one for each child) and processing some pears and zucchinis.  I don't think today would have been NEARLY as productive if I hadn't slept so much yesterday, and I would not have slept so much yesterday if I hadn't been fighting migraine all weekend.  This is not an upside to migraine, but it does make me wonder if I'm a new species, a step backward on the evolutionary ladder if you will.

My brain is still a little...buzzy.  It feels fuzzy, but at least it doesn't feel like vomiting anymore.  It's the difference between being able to give the definitions to words my kids are constantly asking for, and waving them away.   And the evening exhaustion is still a go-and-hide kind, but at least it's not a run-weeping-and-slam-the-door kind.  Oh, and I haven't collapsed on the floor at any point today, so bonus.

There's just got to be a better way to get here.  And then, *sigh* Em's pediatrician had to point out today that "These are things we don't normally see" at our referral appointment.  You know, as I sat there with my one corn allergy kid who already goes to UCSF for uncontrolled migraine, and he's examining my other allergy kid whose migraine monster just woke up, like The Obvious wasn't just staring us in the face but also doesn't have its fingers up our noses; Ya, pretty sure I'm aware nothing about us is normal, which is why we go to the doctor like most people get pizza.

So, another trip to UCSF in November, and another in December, and after that hopefully we can either get the girls appointments aligned or do them over the computer, or align them over the computer.  They're all kinds fancy like that.  Until then, I've got to teach Em to grit her teeth and cope with the pain, because school exists.  She just joined the band too, damn it.  Which brings me to our futurecast...

We know a lot more about migraine now than when I was a kid.  No one is telling me that Emily either has Leukemia or growing pains, as my mom was told when I was having undiagnosed abdominal migraines as a kid.  Sasha is already on better meds than I was on ten years ago, and the fact that Emily will be on her second set of neurologists soon is orders of magnitude beyond where I was at her age.  And yet, I still can't imagine anything close to a decent life for either of them.  I'm sure this is just me projecting, and by no means do I spend time worrying about their futures.  Ain't nobody got time for that mess, it's still pear season for the love of all things holy!  But every time we talk about future anything, it feels like pretend.

But we found a really cool notebook at Target today.  It has movable tabs, pockets, and even a spot to hold onto your pen.  Plus I got a couple of nifty D ring binders for my homeschool schnazz.  Still hate homeschool, still love school supplies.  Oh, and when we got there, they hadn't even popped the popcorn yet so Sasha didn't have to wear her mask.  Double Bonus.  Triple bonus, my new organizational paradigm arrives Wednesday.





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