So, I need a moderately convenient way to keep two paper migraine journals, because that's how UCSF rolls. The three different apps on my phone are obnoxious enough, but at least they keep mine, Sasha's, and Emily's separate. And truth be told, I haven't used it for Sasha in a million years because there is no point currently. However, Sasha has two paper migraine journals. Now Emily is going to have the app as well as the UCSF journal, since she started getting abdominal migraines again, and until we actually can get to UCSF, I may as well start getting used to their journaling for her as well as Sasha. Actually, we'll be using those for the foreseeable future.
Fuck. I don't want to carry around a clipboard. Those stupid things are a full sheet of paper each. UCSF is the best place I've ever been to, but their migraine journals suck. First of all, they need to be electronic because IT'S THE YEAR TWO THOUSAND FIFTEEN. Second, I already carry a backpack for everyone's emergency meds, emergency food and water, emergency hats and shades etc., I don't want a bigger one for our flipping migraine journals as well.
There is no pinterest for us. Actually, maybe there is, I just haven't looked. Quick, someone see if there's a pinterest for how to keep all your paper migraine journals and emergency food and meds handy and organized.
I'm afraid I need a new backpack organizational paradigm. Swear swear swear swear swear. Oh wait, undetectable extension charm!!! Shoot, never mind. Blagh. I need...something. You know, Tom Bihn, maker of all things svelte in the bag and organizational department, probably has exactly what I need. *sigh* It'll just cost. But everything costs.
Dear Jesus, please bless us with unlimited energy, health, and money. Amen.
You know, someday I would like to carry a pretty purse, play music, and purchase and wear clothes beside the same jeans and t-shirts I've been wearing for untold years now. Not that I'm upset about my awesome backpack (which i LOVE!!!) or my clothes, but I do miss the music. And the interaction with grown-ups about other stuff beside illness. But I do enjoy the feeling of badassery that comes with canning and preserving food, and surviving the massive shitstorm that is our life. I mean, mainly it sucks missing everything and not talking to friends and family and feeling misunderstood and writing letter after letter and blog after blog about the same thing, but thankfully, we are not without triumph.
Well, I've gotta go pickup some homeschool curriculum, and blow money on a new organizational paradigm. Then of course there is more food prep to do since I'm always behind, this week due to lovely hormone migraine. Change And Let Go, my favorite invisible tattoo is always there to help me roll with it. I Lack Nothing has been less helpful these days, but we're still here I guess. It's probably good I have both, if for nothing else than balance and symmetry. Hah, at least my invisible tattoos are balanced, if nothing else in my life is!
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