Saturday, February 6, 2021

An Old Diagnosis

 oh my god, fuck FUCK!  Ok, we are as prepared for this as we could possibly be it's fine, really it's not fine but it's going to be...well it's going to be.  Child One had a migraine and took nausea and pain meds and that hasn't happened in years.  But the good news is they worked. My unease lies in the fact he's still in the ucsf pediatric headache system because this is the way of things.  You have a family history of migraine, you present with abdominal migraine as a child.  It may even resolve for a while but you usually end up with some form of classical migraine eventually.  Child One presented abdominally at age 5, was extremely well controlled with meds somewhere into age six, was slammed again at age 9 with both abdominal migraine and ME/CFS, resolved somewhere between 11/12, and is now 14.  The pain is not considered chronic, he usually only gets head pain due to heat.  While that heat threshold is usually low, it's not usually 70 degrees low. Fuck.  FUCK.  Jesus, it's the middle of winter...

But ok, like I said, this is actually the ideal time.  It's the Sabbatical of Happiness, corn is no longer an issue so any and all meds are on the table, we are in the best place we've ever been in, plague notwithstanding.  And, AND!!!, I have fought the goddamn homeschool system in every direction with regard to Child Two and migraine and mental health so I am a fucking pro.  All the pieces are in place, I've updated the portfolio, and I know exactly who to call when the next appointment is needed if it's even needed.  And who are we kidding, now it's just a waiting game to see when it's going to be needed, and that is anyone's guess.  It's February and thanks to climate change and plague, it could be any time, it could very well be next week. In the before times, I'd say we had at least until August.

Speaking of Child Two, it's been a nightmare managing pain all the damn time.  T minus four days till the trigger point.  Although to be clear, both kids are singing so loudly I'm having to hole up in my closet to even write this.  😏We're so awesome.

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